Winter 2015

From the Director
iCAHE Partner Update
iCAHE Projects Update
iCAHE Resources Update
Actions in Allied Health
New Publications
Researcher Profile
Research Spotlight


From the Director

Vale Professor David Sackett

It was a sad day for many around the world when Prof David Sackett died earlier this year, aged 80.  David’s work influenced healthcare provider training and practice internationally.  His work also provided significant momentum for the consumer engagement movement, and thus it is fitting that he is honoured in this newsletter which features iCAHE activities in working with consumers.

David was an international leader in the evidence-based medicine movement. He advocated not only putting the patient at the centre of all discussions on diagnosis and treatment, but also rigorous assessment of relevant evidence in order to make effective decisions.  In advocating these two ways of thinking, he met significant opposition for many years from his colleagues, until the evidence-based practice movement took off in the 1990s.  

David Sackett was born in Chicago in 1935.  He trained as a medical doctor, and was drafted into the armed services in 1963, finding himself allocated to the US Public Health Service Chronic Disease Research Institute.  There his training in classical epidemiology lead to him declaring that ‘unless epidemiology and biostatistics were integrated into every part of the medical curriculum, they could not be usefully taught’.  He was appointed in 1967 as the founding chair of clinical epidemiology and biostatistics at McMaster University, Canada, where his work in evidence-based medicine flourished.  He worked closely with other luminaries in the evidence-based practice movement, including Gordon Guyatt, Richard Peto, Rory Collins, Iain Chalmers and John Evans.  He moved to Oxford in 1994, and co-founded the Centre for Evidence-Based Medicine, which was strongly linked with the Clinical Trial Service Unit and the Cochrane Centre.  

His philosophy was that professionals lost their edge over time, and needed to be constantly challenged.  His commitment to this was such that aged 49 he repeated his medical residency (a ‘retreading operation’, he called it), because he felt his clinical skills were out of date.   He retired from clinical practice in 1999 but continued to have an enormous influence in shaping the evidence-based practice movement around the world.  

His vision for better practices, and his recognition of the important role of patients in determining the care they received, has made modern day healthcare providers think, teach and practice in a very different way.   

 top


iCAHE Partner Update

Australian Diabetes Educators Association (ADEA)  iCAHE Partnership: evidence-informed person centred care

ADEA and iCAHE have been working together to identify the evidence, and create tools and resources, to better enable Credentialled Diabetes Educators (CDEs) to deliver evidence informed person-centred care.  Projects and outputs include:

 ADEA and iCAHE have also developed an evaluation tool to assist CDEs to implement person centred health literate practices. The tool is currently undergoing comprehensive evaluation and validation with consumers and CDES.

This work will be profiled at a shared workshop session on Person Centred Care at the Australian Diabetes Educators Association/Australian Diabetes Society Annual Scientific Meeting in August 2015.

Australian Diabetes Educators Association (ADEA) iCAHE Partnership: Implementing the ADEA Research Framework

ADEA is committed to supporting its members to access, conduct and participate in quality research. They have developed a Research Framework and have partnered with iCAHE to initially develop two tools to support their members: a Research Register and Research Toolkit. The Register enables members to share contemporary research information and the online Toolkit allows members to explore evidence-based practice and develop their knowledge and understanding of evidence translation.‘The partnership with iCAHE has meant that our members have benefited from the wealth of research expertise and experience of the iCAHE team. Together we have customised the best information about evidence-based practice and sharing our research and practice to benefit members and hence people living with diabetes’

Dr Joanne Ramadge, ADEA CEO

ADEA logo

**********

iCAHE partnership with Department for Education and Child Development (DECD) Children’s Centres

iCAHE and DECD are currently working together to test the value and relevance to Children’s Centres of the iCAHE model of  Journal Clubs.  

iCAHE Journal Clubs provide an avenue for accessing, evaluating and reflecting upon evidenced derived from the literature thereby promoting evidenced-based practice for both the individual practitioner and the organisations for whom they work. iCAHE Journal Clubs have been successfully supporting evidence-based practice in (allied) health for several years, and have also been piloted with health consumer representatives. 

The idea of testing the value of Journal Clubs grew from our previous partnership work evaluating allied health services in Children’s Centres.  28 Children’s Centre Journal Club facilitators have been trained and are now well underway with their Journal Clubs, posing interesting and thought-proving questions to improve practice and ultimately the outcomes for the children and families with whom they work.  Examples of the questions posed by the iCAHE Children’s Centres Journal Clubs include:

  • What strategies and outcomes have been documented to implement co-ordinated teamwork in Children’s Centres or similar services?
  • How have early childhood services in the UK and USA that are similar to Children’s Centres evaluated their outcomes?   
  • What strategies can we use to build a collaborative working culture in a Children's Centre with a Multi-disciplinary team?   
  • What strategies and outcomes have been documented to successfully engage Aboriginal families in a meaningful and culturally sensitive way to improve engagement in early learning programs?

This pilot will finish in August 2015 and the evaluation will inform future priorities in the iCAHE DECD Children’s centres Partnership.

top


iCAHE Projects Update

Project reports: Functional decline in community-dwelling older people and the Medicare 75+ Health Assessment (75+ HA)

iCAHE’s final report for this project has been submitted and accepted. Two papers have been published (Beaton et al. 2015 Beaton, K., McEvoy, C., & Grimmer, K. (2015). Identifying indicators of early functional decline in community‐dwelling older people: A review. Geriatrics & gerontology international15(2), 133-140. and Grimmer et al. 2015; Grimmer K Kennedy K Milanese S Price K, and  KayD (2015). The Australian 75+ Health Assessment: could it detect early functional decline better?Aust. Health Review) and two more prepared for submission. 

This project  identified ways in which the 75+ Health Assessment (75+ HA) could be more effectively used to better enable people to live safely, independently and well in the community home of their choice, for as long as they choose. It also identified the resilience, adaptability and independence of older people and ways in which they consider the community could provide more flexible, timely and affordable support to avoid the need for expensive - and often less relevant - health care services. The  report makes recommendations about the ways in which the 75+HA could be enhanced and support older people as they plan for ageing in place ie ageing while living independently in community accommodation of choice ie not supported residential care. A brief summary follows.

Minimising residential care, maximising community living

Functional decline (FD) describes the (often insidious) loss of physical, social and/or thinking/ planning capacity, generally found in older people. FD impacts on their capacity to live safely and independently in their community. FD need not be an inevitable consequence of ageing, as it can be prevented, or managed, with early detection, shared planning and decision-making between primary care providers and older people, and their families, and appropriate community supports. 

Key messages from the project
  • There is a lack of awareness and knowledge about early FD in all health care sectors.  FD can commence insidiously, and thus can be undetected in people seemingly living successfully in the community. It is often not detected until a health crisis occurs and older people are hospitalised.  Hospital-based functional assessments are made when older people are unwell, and in unfamiliar environments, leading to potential mis-diagnosis and/or mis-management of perceived problems. At this point, it is often too late to reverse the consequences of unmanaged FD.
  • Primary care is the ideal setting to detect FD early enough for effective intervention that reverses, or manages FD manifestations.  Older people are in familiar surroundings, and are generally known to their GPs. The 75+ HA is one Medicare item which could be used to detect FD earlier, but it needs to be brought up to date with the current evidence-base for early FD.
  • Currently, benefits of 75+ HA are variably perceived by GPs, practice nurses and consumers.  There are no standards for ’marketing’, undertaking, or following-up, the 75+HA.  Managing early FD does not require expensive health services. It needs consumers to partner with primary care providers to identify and access timely, relevant supports.  Early detection of FD in primary care will assist older people to remain living for longer in the community home of their choice.  It will significantly reduce consumer and community costs, improve consumer independence and choice, and alleviate unnecessary burdens on secondary and tertiary care.

The Research Team expresses its appreciation to APHCRI and the Australian Government for the opportunity to do this work; to our Research Partners, in particular Unicare staff and patients; to the members of our Steering Group; and most importantly, to our consumer participants.

**********

Co-design of a tool for older people to plan for living in the community home of their choice 

iCAHE is currently validating a tool developed by, with and for older people to shape planning to enable older people to continue to live safely, independently and with dignity in the community home of their choice (‘ageing-in-place’). 
This work grew out the project: Functional decline in community-dwelling older people and the Medicare 75+ Health Assessment (75+ HA) in which people aged 65+ years were asked what made for successful ageing-in-place and what support they and their peers might need to achieve their personal goals in this regard.

Interviewees said that people could almost always achieve their goals for ageing-in-place if there was timely, easily accessible information that led them to flexible – and generally very simple and cost efficient – support services. Their observation was that ‘too little too late’ was what created the problems. In looking at the literature, we observed a dominant focus on planning for ageing and decline, rather than consumer-lead, preventative environmental adaptation to support independence, resilience, adaptation and choice. 

We analysed the information consumers gave us and are now seeking to test and validate the tool with consumer representatives and policy makers. We hope this co-designed tool will assist consumers and services to take a strengths-based approach to ageing-in-place.

For further information: icahe@unisa.edu.au

A project of the Australian Primary Health Care Research Institute, supported by a grant from the Australian Government Department of health under the primary Health care Research, Evaluation and Development Strategy.

Balance in Girls Study reaches half way mark

The Balance in Girls (BiG) study is well on the way to completing its work with 40 girls aged 8-10 years, and their families, to inform our understanding of the impact of balance on participation in physical activity. 

Participating children and their parents visit the Biomechanics Laboratory at Uni SA for a once off two hour physical assessment. Information is also collected about the girls’ health, development and life context and then the girls wear a movement sensor for eight days. Families are reimbursed for their time and expenses incurred.

Ultimately this study will inform how we can better support children to participate in physical activity and enhance their health and wellbeing.

For further information, contact Margarita:  margarita.tsiros@unisa.edu.au

**********

Japanese systematic reviews; Koya Mine.

Hello everyone. I have been working in iCAHE since December 2014. My main role was to collect Japanese-language papers to undertake systematic reviews under the supervision of Takashi, Steve and Karen. This was originally the idea of Karen and Steve and they gave me many helpful suggestions about manuscripts and general directions of the research. Takashi, who is a professor in Tokyo University of Technology, helped the systematic search using Ichushi, the biggest Japanese-language database. Without him, nothing has been possible in this project.

Topics we have dealt with so far include

1) the effects of microwave diathermy on delayed onset muscle soreness,

2) acute effects of stretching on maximal strength,

3) the effectiveness of conservative management for baseball players with disabled throwing shoulder and

4) the effectiveness of stretching to resolve posterior shoulder tightness. I performed many scoping searches to find any topic, with which we could undertake a systematic review.

General findings I found in the process are the following;

1) there are not many Japanese-language clinical trials using actual patients in musculoskeletal physiotherapy field, many studies are clinical reviews with expert opinions, studies with kinetic analysis using healthy subjects and so on,

2) many studies are just conference abstracts, not original papers published in journals and

3) even if there are proper studies we could include in a systematic review, study quality is generally not good.

There are many things to be said about these problems, however it was a great learning moment for me because I could someday give some feedback to Japanese researchers to improve their work.

Recently we have been working on the systematic review about the effectiveness of conservative management for baseball players with disabled throwing shoulder. Baseball is more popular than sumo wrestling or Australian football in Japan. Many boys play baseball and want to be rich professional baseball players. There is no systematic review on this topic even in English-language literature. In our review, we found seven Japanese studies. Not surprisingly, evidence level and study quality of included studies were not very good. But interestingly, some of the interventions examined in the included studies (form correction, stretching to reduce posterior shoulder tightness and strengthening to improve scapular/trunk stability) were similar to recommended approaches in English-language clinical reviews. This was interesting particularly because those Japanese studies did not refer to the English-language reviews at all, so they independently supported expert opinions in the English-language literature. 

This whole project is very challenging, but also rewarding because I can learn many things. I hope more relevant papers will come out in following scoping searches and we can write more papers. Finally, I’d like to thank all the staff in iCAHE for their work and support. Thank you very much indeed.

Koya Mine

**********

Development and validation of a consumer and community engagement framework: a partnership with SA Health’s Office for the Ageing (OftA)

iCAHE has worked with the Office for the Ageing (OftA), and consumer and community representatives, to develop an evidence-informed framework for partnering with consumers and the community.

This work was prompted by OftA’s desire to take an evidence-based approach in consulting with baby boomers about policies and programs. An initial literature review by iCAHE found no substantial evidence so we decided to develop an evidence-informed consumer and community engagement model. The model was validated with consumer and community representatives who refined the model and principles and steps to guide its use. The report  from this project, and a communication to the community participants  who partnered in validating the model, can be found on the iCAHE website.

Consumer Engagement Model

Figure of the consumer engagement framework.

For further information contact: icahe@unisa.edu.au

*********

Professional Certificate in Health Consumer Engagement Co-designers of course one, and achievements to date

Seven health professionals and eight consumer representatives worked together with HCA staff and iCAHE researchers to co-design the first (theory) course for the newly accredited Professional Certificate in Health Consumer Engagement. As a co-design team they shaped the course and contributed to an independent evaluation process.
Ten students chose to participate in the course 1 assessments and all 10 were successful. Seven of these are going on to course 2, in which they will implement their consumer engagement projects. The picture below shows the consumer and researcher participants from the first course 2 planning meeting, convened by student Ms Julie Marker (front and centre).
There will be more news in future newsletters about the student projects and co-design process used as we pilot delivery of the second (application) course within the Professional Certificate.

consumer certificate picture

top


iCAHE Resources Update

Check out the new iCAHE Learning Hub page

The iCAHE learning hub is the starting point for a range of self-directed, open access learning resources aimed to introduce you to, or expand your knowledge of, evidence-based practice (EBP). This section of the iCAHE website provides you with tutorials, podcasts, examples and booklets that you can work through at your own pace and in a manner best suited to your learning style.

Current learning hub courses:

  • EBP e-learning resource: provides an innovative and flexible means for self-directed training at a pace appropriate to your own style of learning. It offers resources and tutorial modules.
  • MS Excel short course in data handling & statistical function with an example dataset: provides you with a structured, enjoyable and practical approach to learn to use MS Excel. These skills will enable you to undertake research and data handling activities within your clinical practice.This booklet is designed for all skill levels, from absolute beginner to more advanced knowledge. 
  • A short course in searching the literature: An introduction to developing a search strategy and executing a search. Also has some useful database hints.

Feature guideline- See This month’s featured guideline on Management of Anterior Cruciate Ligament Injuries

Outcomes Calculator- See the feature outcomes measure, the Upper Extremity Functional Index (UEFI)

top


Actions in Allied Health

The 11th National Allied Health Conference will be held at the Crown Convention Centre in Melbourne Australia, for all allied health disciplines, from 9 - 11 November 2015, with pre-conference workshops held on Monday, 9 November 2015.

The International conference on diet and activity methods (ICDAM9) will be held in Brisbane, from the 1-3 September 2015. The theme of the conference is Eat well, be active. How do you measure up? ICDAM meetings are premier events for the dissemination and discussion of new findings in this rapidly expanding field and an important forum for the interchange of ideas between scientists, clinicians and equipment manufacturers. The 2015 meeting in Brisbane will showcase the cutting-edge in diet and activity methods and feature many of the world's leading researchers and clinicians in the area.

The IAHA 2015 National Conference, Allied Health – Stepping into Action will be held on 1-2 December 2015 at the Pullman Cairns International in Cairns, Queensland. The theme of this conference captures the diverse interdisciplinary action that occurs within the allied health sector, and how sustained holistic, strengths based approaches to health and wellbeing can achieve Aboriginal and Torres Strait Islander health equality.

The Combined Stroke 2015 Conference will be held from 2 – 4 September 2015 at the Melbourne Convention & Exhibition Centre, VIC, Australia. This will be the third time that SMART STROKES and the SSA (Stroke Society of Australasia) join forces to bring the very best platform for all things stroke care related in Australasia. Important cross-over of knowledge is achieved by holding the two annual events together.
With each of the hosting organisations (SSA, and SMART STROKES) focusing on slightly different ends of the stroke care spectrum, the Conference is your ideal platform for all aspects of stroke management, from stroke risk and translation through to recovery, rehabilitation and community reintegration.

The 7th International Conference of EBHC Teachers & Developers, Trasforming health care for a sustainable future: from evidence to value, will be held in Taormina, Italy from the 28-31 October 2015. Evidence for Sustainability of Health Care: increasing value, reducing waste aims to promote an evidence-based approach to sustainability of health services, where evidence should inform all health care decisions at every level (patients, health care professionals and policy-makers) and cuts-based programs to contain costs should be replaced by an evidence-informed strategy to reduce waste and increase value of health care.

The Australian Diabetes Society (ADS) and the Australian Diabetes Educators Association (ADEA) will be reaffirming their strong partnership as leaders in diabetes education, management and research at the 2015 Annual Scientific Meeting and Exhibition from the 26th - 28th of August 2015. The program will bring together national and international experts to promote the exchange of the latest clinical practices and cutting edge research in diabetes. State-of-the-Art lectures, free communication sessions and clinical and scientific educational symposia, will be appreciated by the 2015 attendees.

top


New Publications

Adams R, Jones A, Lefmann S, Sheppard. Rationing is a reality in rural physiotherapy; a qualitative exploration of service level decision-making. BMC Health Services Research. (In press)
Abstract

Atlas A, Grimmer K, Kennedy K. 2015 Early indications that low mental quality of life scores in recently unwell older people predict downstream functional decline. Clinical Interventions in Ageing
2015:10 703-712

Abstract

Luker J, Lynch E, Bernhardsson S, Bennett S, Bernhardt J. 2015 Stroke survivors’ experiences of physical rehabilitation ; a systematic review of qualitative studies. Archives of Physical Medicine and Rehabilitation.  2015 Apr 3. pii: S0003-9993(15)00290-7. doi: 10.1016/j.apmr.2015.03.017. [Epub ahead of print]

Abstract 

Hillier S, Worley A. 2015 The Effectiveness of Feldenkrais method; a systematic review of the evidence. Evidence-based Complementary and Alternative Medicine. Vol 2015 Article ID 752160 12 pages

Abstract

Gonzales-Suarez C, Lee-Pineda K, Caralipio N, Grimmer K, Sibug E, Velasco Z. 2015 Is What Filipino Children Eat Between Meals Associated with Body Mass Index. Vol 27(2)NP650-NP661

Abstract

 Adams R, Jones A, Lefmann S, Sheppard 2015 Service Level Decision-Making in Rural Physiotherapy. Development of Conceptual Models. Physiotherapy Research International. 

Abstract

Adams R, Jones A, Lefmann S, Sheppard. 2015 Decision making about rural physiotherapy service provision varies with sector, size and rurality. The Internet Journal of Allied Health Sciences. http://ijahsp.nova.edu Vol 13 No 2

Grimmer K, Kennedy K, Milanese S, Price K, Kay D. 2015. The Australian 75+ Health Assessment: could it detect early functional decline better? CSIRO Publishing. Australian Health Review.  http://dx.doi.org/10.1071/AH15011.    Published online: 9 June 2015

Banwell H, Thewlis D, Mackintosh S. 2015. Adults with flexible pes planus and the approach to the prescription of customised foot orthoses in clinical practice; a clinical records audit. The Foot volume 25, Issue 2, June 2015, Pages 101-109.  

Abstract 

Eads J, Mosley GL, Hillier S. 2015. Non-informative vision enhances tactile acuity: a systematic review and meta-analysis. Neuropsychologia.  2015 Jun 9;75:179-185. doi: 10.1016/j.neuropsychologia.2015.06.006. [Epub ahead of print] 

Abstract 

Lawal I, Hillier S, Hamzat T, Rhoda A. 2015. Effectiveness of a structured circuit class therapy model in stroke rehabilitation; a protocol for a randomised controlled trial. BMC Neurology. 2015, 15:88 

Abstract 

top


Researcher Profiles

Felicity Braithwaite, PhD Candidate. 

Felicity Braithwaite

I finished my Bachelor of Physiotherapy (with Honours) last year, and my honours project involved testing a sham needle for blinding effectiveness. This project lead to my discovery of many unresolved issues in needling research, particularly around sham methods, so this inspired me to continue researching this area in the form of a PhD, which I commenced in mid-February 2015. I have been working on my research proposal over the last 4 months. My research focus is developing a ‘sham’ (or placebo) needling protocol for dry needling that can effectively blind participants to which treatment they receive. I have also been an associate supervisor for a Bachelor of Physiotherapy (with Honours) student (Scott Buckerfield), with principle supervisor Dr Maureen McEvoy and co-supervisor Dr Julie Walters since February this year. This project is looking at the feasibility of conducting a research project in the student physiotherapy clinic at UniSA, with a secondary aim of investigating the effect of dry needling on hamstring length 

*********

Congratulations to Sujatha Raj

Sujatha has been successful with an Endeavour Foundation Endowment Challenge Fund Student Award ($5,000) to support her PhD studies investigating home-based occupational therapy in people with Down’s Syndrome and dementia (supervisors Mandy Stanley, Shylie Mackintosh and Caroline Fryer). Did you know that adults with Down’s Syndrome have an increased risk of developing younger-onset Alzheimer’s disease because of their chromosomal anomaly?

*********

Good Luck Claire McEvoy

iCAHE is sad to say farewell to one of our amazing Research Assistants, Claire McEvoy. Claire has been an instrumental part of the iCAHE research teams and has worked on a range of projects in the time she was with us. These include the APHCRI functional decline project, resulting in the online tools to assess early functional decline compendium; the Balance in Girls study (BiG, see this issue for more details), and the iCAHE journals clubs to mention just a few.  Claire has also kept us all entertained and happy with invitations to her Adelaide Fringe Festival shows, the occasional interpretive dance, and her warm and caring nature. Claire will be heading off to the Netherlands for a few years with her husband, and we wish her all the best in her future endeavours. We will miss you Claire!

top


Research Spotlight

iCAHE at the 9th World Congress of the International Society of Physical Medicine and Rehabilitation in Berlin, Germany on June 19-23, 2015.

Dr Janine Dizon and Dr Consuelo Gonzalez-Suarez recently presented at the 9th World Congress of the International Society of Physical Medicine and Rehabilitation in Berlin.  The topic of the Conference Session: Clinical Practice Guideline: Contextualization and Implementation in Developing Countries 

1.Contextualization of the Clinical Practice Guidelines: Steps to Follow

SPEAKER: Carolina Valdecanas MD, FPARM 

2.Current Practice in Stroke Rehabilitation in the Philippines

SPEAKER: Romil Martinez, MD, FPARM 

3.Implementation of A Clinical Practice Guideline in a developing country: overcoming the obstacles

SPEAKER: Consuelo B. Gonzalez-Suarez, MD, PhD, FPARM 

4.Breaking the barriers in implementing clinical practice guideline: a multidisciplinary approach

SPEAKER:  Janine Margarita R Dizon, PhD

Presenters at the Clinical Practice Guidelines conferenceDr Janine DizonDr Consuelo Gonzalez-Suarez

Pictures from left to right: the presenters at the Clinical Practice Guideline: Contextualization and Implementation in Developing Countries session; Dr Janine Dizon presenting Breaking the barriers in implementing clinical practice guideline: a multidisciplinary approach.

**********

iCAHE at the European Stroke Organisation Conference, April 17-19, Glasgow UK.

The work of iCAHE stroke and rehabilitation researchers was well represented at this interesting international stroke conference. At least eight conference presentations featured the work of iCAHE representatives including A/Prof Susan Hillier, Dr Michelle McDonnell, Dr Julie Luker, Dr Coralie English, Elizabeth Lynch and Lindy Williams. The conference offered a good balance of high quality stroke research from bench-top science through acute management and rehabilitation. A bonus was spending time in the company of many stroke research colleagues from local, interstate and international collaborations.  

Liz Lynch and Julie Luker

Stroke Survivors’ Experiences of Physical Rehabilitation: A Systematic Review of Qualitative Studies 

Julie Luker, Elizabeth Lynch, Susanne Bernhardsson, Leanne Bennett, Julie Bernhardt. 

At present, there is little collective knowledge about stroke survivors’ experiences of, and preferences for, different models of physical activity and rehabilitation. Therefore the objective of this study was to synthesize the perspectives, experiences, and preferences of stroke survivors undertaking inpatient physical rehabilitation through a systematic review of qualitative studies. Data regarding characteristics of 32 included documents was extracted and thematic synthesis was used to synthesise the results of the studies.

Nine interrelated themes were identified: (1) Physical activity is valued: participants believed that more physical activity is better for recovery, walking and mobility were especially important; (2) Bored and alone: one reason for wanting more activity was that participants commonly reported feeling bored and/or feeling alone during their inpatient stay; (3) Patient-centred therapy:  patient-generated goals were important and participants wanted to work on meaningful tasks in therapy; (4) Recreation is also rehabilitation: a desire for access to more recreational activities was expressed (e.g. reading materials, electronic games, exercise equipment, and crafts); (5) Dependency and lack of control:  fear, anxiety, and frustration were experienced by many during rehabilitation, frustration especially came from a lack of control; (6) Fostering autonomy: for many, reclaiming autonomy marks recovery; (7) Power of communication and information: good communication was empowering, while poor communication was disempowering and had the potential to diminish autonomy, confidence, and motivation. (8) Motivation needs nurturing: motivation to rehabilitate can be affected positively or negatively by the treating team. Humour was important to many participants and was recognised as a way of maintaining a positive outlook during difficult times; (9) Fatigue can overwhelm: stroke-related fatigue could overwhelm patients ambitions to be more active or independent. 

In summary, rehabilitation could be improved by increasing activity within formal therapy and in free time, fostering patients’ autonomy through genuinely patient-centred care, and more effective communication and information. 

**********

Introduction to the Consumer Engagement Research Area Team

The Consumer Engagement Research Area Team  focusses on evidence-informed consumer engagement in health research, governance, policy, services and care.  

The work of the group is supported by our partnership activity with South Australia’s peak health consumer group, the Health Consumers Alliance of South Australia (hcasa.asn.au); together we promote consumer engagement research, education, information dissemination, advocacy and partnerships. 

One outcome from this partnership is the new Professional Certificate in Consumer Engagement. We are currently developing a primer for students of this course. 

We seek to operate in trans-disciplinary health and research teams and with community, clinical and corporate partners to ensure our work benefits the community and supports national policy including the National Safety and Quality Health Service Standard 2: Partnering with consumers (safetyandquality.gov.au) (ADEA).

iCAHE has recently undertaken a number of consumer engagement activities. These include systematic reviews related to consumer-centred care and health literacy for the Australian Diabetes Educators Association; a model of consumer and community engagement for the SA Health Office for the Ageing; and development of a consumer co-designed tool to support early identification and action to enable older people to continue to live in the community home of their choice. This newsletter provides updated information about this work.
For further information: icahe@unisa.edu.au

top


Areas of study and research

+ Click to minimise